I had the MUGA scan on my heart today. That was pretty easy and relatively quick compared to some of the other scans I have had. I apparently have a heart. I know some ladies out there that would say differently, but screw them. hahaha. The MUGA scan scans the hearts injection rates. The range most people are in is 50-60. My rating was a 54 which is perfectly healthy. So the chemo hasn't affect my heart at all so far. That was pretty sweet.
Dr.Maddaus's assistant Terry called me today and is setting up which doctors Maddaus wants me to see. Keith Skubitz is going to be my primary sarcoma physician. He has a 20 year background in sarcoma cancer. I attached the guys person page on the U of M site at the bottom of this post. I also requested that U of M look over all of my biopsy notes and samples to see if they agree with the actual diagnosis. The more I read into angiosarcoma my case just doesn't seem to match it. Not that I am a medical professional at all but it doesn't hurt to have them look over it since they are a sarcoma care center. When I get up there it will basically be a fresh start on everything except I am going to have one more chemo treatment here then move up there until I beat this thing. I have pretty much decided that July 8th is my moving day. They are setting up an appointment and scans for the end of that week in Minneapolis. I know this is going to be hard on some of my family and they just need to realize a few things about me going up there: 1.) I am there for the best possible cancer care and to beat this damn thing one more time. No way around it that is the main reason for going up there. 2.) I don't truly trust the UWHealth after the amount of time and inability to diagnose me with anything for 3 weeks. Second opinions do not hurt anything anyways. 3.) I have a great group of friends up there that are willing to help me out if need be. 4.) I need to get out of Madison and free my mind of stupid things and stay busy. I find those to be pretty good reasons. I just don't know what I am going to do without having the Brewers on the radio or on TV. I guess I have to find my XM radio charger for my roady.
Keith Skubitz: http://www.umphysicians.umn.edu/physicians_detail_OBJECTNAME_Skubitz_Keith_3987.html
Three questions to answer today!
Q: Why did I go to work when I was sick with chemo?
A: Well it is going to sound really weird but to get my mind off of the situation that was the only thing I knew would work. The only problem was that work drained me way too much. That and I wasn't sure if I was on short term disability yet. I will not be going into work next time though.
Q: After I beat cancer again will I be staying in Minneapolis or coming back to Madison?
A: This question has been asked to me plenty of times. Let me just air it out right now. My full time job and housing is in Madison. I will be coming back down here after everything is done. UNLESS an opening happens on at one of the 3 stores in the cities. I would then apply for a transfer and bust my ass getting it. There is no secret that I love it up there. I came to Madison for two reasons. To be closer to my family for the first time since I was a child and to try living in a town that I absolutely loved visiting. Now that I am 27 I think I have traveled and moved around enough for me to try and pick a place and stick with it and build a life there. Don't get me wrong Madison is a great place with some really good people and things to do. The one thing is I always compare places to Minneapolis and the only things that piss me off about the cities are the sports teams, high price for drinks, and the extra month of winter. Pretty small reasons if you ask me. I answered this one the best I could. I will be back unless an opportunity and I kick cancers ass relatively quick.
Q: How can you stay grounded with everything going on to you?
A: Let me tell you that it is the hardest thing I have ever had to do. This is way worse than the first time through. I think about everything related to cancer. It is a struggle everyday to keep my head in the mindset of kicking the frigging hell out of this thing. I must admit that I am terrified all in the same. I am so scared of possible outcomes of test results. It does and does not help that I have been through it all before. I really want to take a PET scan and get the results back that there is a small area that is active. Seeing as I can feel the tumor on my chest it freaks me out. I have always been a strong personality and a bit of an ego freak. Nothing new there. I just hope and pray everyday that I am strong enough to tackle what is in front of me. The other problem I have is that I am so aggressive and pushy when wanting to deal with this thing that I don't want to wait around every third week to treat the cancer. The other problem I know I have it that I have terrible luck. I always have and always will. I will win this battle keep it from coming back. I am also thinking of changing a few things in my life after I am done as well. I pretty much consider myself the toughest son of a bitch you have ever seen when it comes to life issues. Then again the ultimate tough guy list 1. Chuck Norris (duh!) 2. Justin Nuoffer 3. Jason Statham (the transporter hell yeah!) 4. Stallone (One word: RAMBO) I would say that is some pretty good company to be in...hahahaha.
Subscribe to:
Post Comments (Atom)
5 comments:
tougher than Rambo/Rocky? if you say so.... ;) take care, always thinking about you.
I have some pretty sweet kung fu moves.
#6 Chuck Norris' morning shit
#7 Jeff Kawell
#8 Sgt Mark Gehler (that's right bich, personal opinion, whatever, get over yourself)
#9 Techno Viking (look him up on youtube)
UWHealth SUCKKKKKKKKSSSS!!!!! I know this from experience. My medical doctor was trying to tell me I had carpel tunnel. I pointed out that I your carpels are in your hands so that doesnt explain why i am walking funny. Then when i told her that I should go to a neurologist she said "yeah, that sounds like a good idea" Oct 10th was my first doctor appointment, I had to wait almost 2 weeks before they would even give me my test results. By the time they had everything set up they were looking at middle of november before they would have me see a neurologist and then middle of december before i could even get an MRI. Needless to say, my dad drove all the way from eau claire to madison just to yell at my doctor, then we called luther midlefort in eau claire. they had a cancelation on halloween so i could go in for my MRI, a spinal tap, 5 days of predislone and a spinal headache, they had diagnosed me with MS before i would have even had my first nuerology appointment in Madison. They apparently have an MS research area at UW Health, i never even wanted to try to check that out after the BS they put me though. So for the past year and a half i have just been going back to eau claire for everything because its worth having a doctor you can trust other than the bozo's at UW that are probably UW Madison dropouts, they might as well be anyways with the amount of crap they put people through. i am glad you are finally going back to minnesota.
As always Amber I share your disgust with the time frame they seem to use at UW.
Post a Comment