Wednesday, June 4, 2008

Strange strange day

So today has been a mixed bag of things. Last night I couldn't sleep at all. It was terrible. I kept waking up randomly and sometimes it was from pain. I think the medicines just aren't working anymore. So I had the thing in my arm pit removed and the results came back today that it was not a tumor nor a cist. It is some kind of disease that is pretty rare but not anything major. The name of it is Hidradenitis Suppurativa. Basically it is a big pimple that is deep under the skin and causes a lot of pain and possibly disabilities if not treated. Otherwise I am glad that was taken care of. The tingling running down my arm is gone and so in the pain. I found all of this out through my doctor today and I had to ask him some questions. Obviously the first one I had to ask him was how bad the tumor on my chest is. He said that if not treated it obviously it can be fatal. On a scale of 1 to 10 and 10 being the worst he is think a 6 or a 7 so that is how serious it is. I think I have been taking this a bit too lightly. The option of going to the University of Minnesota seems to be the only option that I am willing to be comfortable about now. My doctor has been telling me that they are moving as fast as they can. That is unacceptable to me since the last time I was on chemo 4 days after my biopsy. Granted they have to do another biopsy since the mass they removed was nothing related to the issues at hand. So I have to have a needle biopsy in my chest once again. The possibility of guiding a needle to my spleen is also an option. I guess I am so much more comfortable with my doctors in the twin cities who work so much faster. If the situation is so serious why are they waiting so long. Other than that I have not been feeling very good at all and I feel terrible still. I am wondering if I have an infection in my arm pit. I am sure the extreme lack of sleep also has something to do with it.
This morning I also spoke with Sully Anderson's mother about a juice that she has been reading and going to seminars about. Mangosteen juice has supposidly helped destroy tumors in non-medicinal experiments. The way I see it I am willing to try anything and why shouldn't I?

I received an e-mail from my friend Johnny and it struck a nerve with me. I still don't know why. I get a lot of messages and e-mails from people but this one has stuck with me. He doesn't know I am posting this and I don't think he will get upset by me doing it but I feel it is rather important for me to share with everyone.

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From: Juan Cantu
Sent: Wed 6/4/2008 8:58 AM
To: Justin Nuoffer
Subject: RE:


Hey man that sucks. I will keep you in my prayers and in my thoughts. My family is
going to go to the shrine in South Texas (Virden de San Juan Shrine in San Juan,
Texas) and light a candle and say a prayer for you as well. Stay positive and
strong. You are the type of person that can make it through something like this. I
don't know that I have ever met someone in my life that is as down to earth and
willing to accept the cards that life deals and be able to overcome all obstacles.
Keep me informed. Talk to you later bro.

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The church has a web site and it is here.
http://www.sanjuanshrine.org/

As a lot of you know I am not an over religious person at all. I believe in strength and one self.
I want to clarify a few things as well. I am actually rather terrified of fighting this thing again but I am not scared to go to battle with it. Since I am a survivor already I believe I am able to hold it together and deal with things a lot better.
As for coming back to Minnesota for treatments and surgery. That is something I have to work on pretty quick here and figure out if I can get that transfer to Bloomington and get all of the info to U of MN. So I guess if anyone has an extra room in their house that they get let me rent out for dirt cheap until things change and I can pretty much hide in while I have chemo treatments.

4 comments:

andrewghalverson said...

hey man i dont live in the citys but your all ways welcome to crash at my place in Eau Claire any time you need to

Amber said...

hey sugar pie, i worry about you everyday while you're going through this. i'm glad you decided to write a blog to keep all of us updated. i vote for you to stay at dustin's, he's lonely when i'm not there. its not exactly in the cities, but its close and you would have your own room.

it pisses me off to no end how doctors are about getting things done in a timely matter, whats the point of saying you're helping someone when you are procrastinating on getting stuff done. i hated the madison doctors i had to deal with, so thats why i kept my neurologist in eau claire. if you know you have good doctors in the cities, then thats who you should go with. good luck and keep me posted on anything!!! :)

Heather said...

Consider yourself linked. I am really glad you are doing this blog, it's a really nice journaling tool.

Traci said...

Hey Justin...I am so sorry that you have to go through this all again.Can't imagine how your feeling. If you do end up coming back to MN, I live in Burnsville and have an extra bedroom that you are more than welcome to stay in if you need to. Keep up the positive attitude!