Where do I start? The conversation I had last night with my Oncologist here really pissed me off. The sense of urgency just isn't there. This morning was spent between phone calls to Methodist Hospital and University of Minnesota-Fairview seeing if I am still considered a new patient or current. I am considered a current patient so that is good considering they are not accepting new patients. My old Oncologist Dr. Joseph Leech is the head Oncologist at St. Francis in Shakopee now which is where I would go if/when I go back to Minnesota. I asked my company if they are able to transfer my position to the Bloomington store and they are checking into the possibility of moving me there and being able to work when I am not doing chemotherapy or having surgeries. Everything is up in the air though. Gustave Larson is being pretty damn good about everything so far. I already have the forms for my short term disability and the extended leave paperwork. I guess getting these things done before hand are really important. Trust me I know from experience. The later those things get taken care of the worse it is going to get and the more fighting with the insurance companies that will for sure happen. So I am trying to avoid it at all cost. I also e-mailed my contact at the American Cancer Society and he read about my situation the told me about a possible way for me to apply for a hotel style living while getting treatments in Minnesota. I am getting more info on that just to make sure it is something I can qualify for or would even be interested in. As far as I can tell everything is good to go back up there but I still need to get my copies of my medical records up to those locations before anything happens.
The conversation last night also revealed that I had to do another biopsy and this time it was for the tumor on my chest. They scheduled the my appointment to have it removed at noon today and I obviously made it is on time and I was told that I should be in and out in about an hour. Great right!?! Not really, I wasn't informed the details about the procedure. The procedure was actually a something called a CT biopsy. Relatively simple sounding huh? I was placed on the CT board and scanned a few times. After looking at the scans they determined where the best spot to stick a needle is then they scan me again to check the mark. Once the mark is good enough to go they still had me laying down flat in the board and ran a needle down under the skin and tried to get closer and closer to the tumor. Then once it is right next to the tumor they take another needle and jam it right through the existing one next to the tumor. Then the doctor slammed down on it and it made a clicking sound meaning the needle got a part of it from the tumor. The doctor actually did that twice. Apparently they haven't had anyone in pain at all besides the original novocane shots. When the doctor slammed on the needle the two times I jumped up and screamed. It hurt so bad and it actually still stings a bit. The results will be back tomorrow afternoon sometime and lucky me I have an appointment to set up the plan of attack with my Oncologist here. There are two types of germ cell tumors that is can be. I forgot the names of them both but the type I had the first time is what we need it to be. It will be easier to deal with and I would have to have a bone marrow transplant on top of a small hacking away of my chest. If it is not what we are hoping it is then we are going to be fighting something pretty damn ugly. I will go through chemotherapy obviously but there will be so many more surgeries and I pretty much wont have a chest wall at all. So lets hope it is the junk I had before. All in all I was in the office for about 4 hours then I went back to work to get my hours back on my check. What a day. When I go to the oncologists office tomorrow. I am going to have my folks with me. I really don't understand why they want to go but I'm not going to stop them. They have actually been pretty cool about everything so far and are taking my decision to try and go to Minnesota quite well. then again I am also 27 years old and it is my live. Well I am off to be now and lets hope I finally can get more than an hours worth of continuous sleep for the first time in three nights.
Thursday, June 5, 2008
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