Well I had an appointment with my surgeon today and I must say that I am flying high right now. There was some pretty good news thrown at me from him. Dr.Maddaus walked into the room and sat down then started to shoot the breeze with me a bit then we got down to business. He looked at me, leaned over towards me, and then said,"I can get all of it right now. Not everyone can do this type of surgery but I can and lets do it." I can't wait to throw it in my oncologists face and tell him that I can beat it. I told you people that this guy is a serious go getter and the best of the best in the surgeon department. Maybe I under estimated my oncologist in Madison a bit. Dr. Hegeman did say that this is beatable and it would be a hard road. The one thing that realy bothered me a lot was that it took 3 weeks to figure it out. That to me is unaccpetable in any circumstance. I also found out that my surgeon and doctors are covered through Humana(my health insurance). The University of Minnesota is not covered at all through my in network but in my out of network so I am looking at atleast $10,000 when this thing is over and done with. I don't really care as long as this thing is over and done with for good! What is ones life worth? I don't care the amount of dollars it takes and I hope everyone else would be in the same boat.
Here is how the surgery would take place. I would go in in the morning and the entire thing would be done in one swoop. They would start with my spleen and remove that to try and control the bleeding. Then the major part of the surgery would take place. They will split the skin right down the middle of my chest and peel it off to the side. After they have done that they will start to remove the actual tumor before removing the muscles. Once they have stripped the entire muscle and cartilidge there down to the bone Dr. Maddaus would go to my lung and remove the pieces there from the last surgery I had. After that was done he would take a chunk of goretex plastic and fit it for the entire left chest area and strap/staple it to the bone and make it as secure as possible. Once it is placed correctly the plastic surgeon would come in and help build/create a new muscle structure over the top of the goretex piece. That is the entire procedure from what I was told. At the moment it is up to me to decide when to go in for surgery. I am more so leaning towards soon. Earlier today I wanted to shrink it and try to kill it off more but what are the odds of it continuing to grow? They are just the same. It will be weighing on my mind this week a bit.
My friend Chris who is putting together a benefit up here in the cities to help me pay off my medical bills told me that the date for it is Saturday Sept.27th. He also told me that one of the largest and most popular bands in Minneapolis has joined on to help me out. They are called The Stnnng. He asked me for a list of bands who I would love to see on the bill to help out and I emailed them to him yesterday so I am looking forward to seeing what he comes up with. Well that is all I have for everyone at the moment and I am off to ponder my choices.
If you do not know what goretex is read about it here
Tuesday, August 12, 2008
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3 comments:
Wow! That is some crazy good news!!! :)
This is so fraking awesome! I'm so happy! Keep drinking your mangosteen and eating right/exercising so that you can shorten your recovery time and keep your body at the point where it adapts well to what you're having done.
I'm so happy for you! I'm so proud of you! Keep fighting hard, it's gotten you this far and it will keep you going through the next step. Yay, though, you're going to be on the next step!
:) I am very happy to read this! Keep us all updated about the benefit.
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