Tuesday, July 1, 2008

I don't get it....

I had a doctors appointment today at UW hospital with 15 year sarcoma specialist Howard Bailey. After I waited 45 minutes in a room his assistant came in and we went over my history and what is currently going on. His assistant is also a doctor of oncology. They both said that my oncologist at UWH is a really smart and good doctor. It still doesn't take away from the fact that the whole unit is completely slow and disorganized. They couldn't even get all of my medical files over to that location after they were requested 3 weeks ago. That is why I had to give them a history myself. That just pisses me off to no extent. I am so sick of their stupidity. Anyways this specialist Dr.Bailey really didn't say anything new. The big thing is figuring out if this is related to the cancer and tumor I had the first time. The first things they would do is take a CT and PET scan to determine exactly where and how much we are fighting against. If this thing spreads from the current tumor location and original starting point in my spleen there will be nothing to fight against except for time to extend my life. That is how serious the situation really is. I also told them that if they have to take out my chest wall and reconstruct it I am completely game. That could be an option if things don't turn around at all. There are so many options and not one of them mean a thing until I get through a few chemo sessions. Currently the lump on my chest seems to be shrinking but that is just from feeling it. The doctor also examined it and thought it was tough but pretty soft which was a little weird to him. The good thing is that they are familiar with my sarcoma specialist in Minneapolis. Apparently, Dr.Skubitz is a published author as well. They knew who he was right away when I said his name. It was a nice sense of relief knowing that he is noted in this field. Let get back to the point of there being so many what ifs and could dos that the only thing in my mind to do is continue to be as aggressive as I have been with doctors, my eating habits, and research. The one thing that they did let me know is that they aren't completely sure that this could be and angiosarcoma because of my history and the habits that type of cancer has. Either way I called the U of M and talked to Dr.Maddaus's assistant Terry and I told her what they told me and I have to send a copy of their medical notes up there for my appointment with Dr.Skubitz next week. Terry did tell me that they received all of my pathology reports and samples on Monday and did their own testing. They determined that it is a sarcoma tumor unfortunately. Not an angiosarcoma exactly though because they want to do more testing to make sure that this really is angio. The best thing that happened though was when Terry informed me that they determined it was a low grade sarcoma. Yes, they said it LOW GRADE! Which is awesome and not as bad as originally thought by UW Health. It still seems to be really aggressive though. So I am not out of the woods by any means this is still the beginning stages and a very ugly type of cancer that a majority of people diagnosed don't live through. Mark my words though.....I will live and beat its ass into remission.

I am so ready for this weekend. The fourth of July I am spending with my folks and some clients of my fathers work at the Brewers game. American Water Heaters is inviting us to join them in their suite. I have never been in a suite at Miller Park and Ben Sheets is pitching as well. I am so excited! I am sure all of you out there realize how much I love the Brewers and baseball in general. That also reminds me to let everyone know that they need to go vote for Ryan Braun to start in the outfield during the All Star game in NYC. Go to www.milwaukeebrewers.com and vote up to 25 times. Saturday will be a relaxing type of day with a small cook out at my grandmas house. On Sunday I am going to go to Summerfest to see 311. 311 is one of my favorite and most positive group of artists out there. Not to mention they are a really great live show. Other than that Monday is pack up day. Tuesday is chemo and sleep day. Then the moving day better known as Wednesday is upon us. I am so excited to get up to the cities and take care of business. It is also a wonderful thing because I can hang out with my friends in Minneapolis and Eau Claire more often. I will miss Madison too. There is no doubt about it. I have two great roommates, a cozy job, a good place to live, a few good friends, close to family, a hop away from Milwaukee and Janesville, and of course how can I forget Badger game days which are the reason Madison is the best college town in America.

More pictures from the good times vault.

This picture was of my good friend Ambah, myself, and my other good friend Wendy. We were at Shennans in Eau Claire dancing the night away. Oh and it was when I came back from Nashville for a weekend in 2005.

My best of buds Nate and I at my going away party in Eau Claire in 2004 right before I moved to Nashville.

1 comment:

Heather said...

I really love your blog. It's so heart-breakingly honest. I hope the concert went well, sorry I missed it.